2nd Annual Ty Robertson's Golf Classic

If your wanting to join us click on the brochure print it out, fill it out and mail it in. If you have any questions just email dougguy1958@yahoo.com. We hope you can make it to the tournament... I will be posting an update of Ty this weekend.

Happy Birthday Ty!

This is was a HUGE day for us. In the beginning and through out the year we didn't know if we would have this opportunity to celebrate this day with Ty. Ty has been such a blessing to so many people and given hope to families in similar situations. I won't be writing much, I am going to let the pictures speak for themselves. I just want to say 'thank you' to everyone that has prayed, loved and supported us through out the year. God has blessed us beyond measures and we could not have done it without you all. Thank you, Thank you, Thank you.

WHY GOD??

I know its been a while, but I have been crazy busy. A lot has happened since the last post, Ty was in excruciating pain and had to have a diaphragmatic hernia repaired (which is where a piece of his bowel was going through his diaphragm into his chest area). He had a hard time with this one because he had to be on hemo dialysis while his belly healed up, a lot of blood lose, pain med withdrawals, bloody stools and a lot of stress. We were in the hospital for 3 weeks with that one.

Now we're in the hospital due his blood pressure being at stroke levels. I think the highest I saw it was 235/128 (normal 120/60). He had to be air lifted to the hospital in Winston, I think I air lifted my car to Winston also;) oops!

Ty is now 10 months old and still behind physically. He still can't sit up, roll over and he really can't hold his head up the best. He hasn't been himself for about 8 weeks now with the surgery and different complications. I don't want to be around people we know with other babies because all I do is compared Ty to them, I know it's not fair to him but I can't help it. Oh! and I've gotten my tears back. There for a long time I felt so cold because I couldn't cry, when no one is looking that's all I do. I envy the parents with normal babies wishing Ty could be normal and not have to go through all this pain, IT'S NOT FAIR. That's what I keep saying, IT'S NOT FAIR. Why us God??? What did we do so wrong.

With Ty being in the hospital this time. I think back and wonder, "well if I went to church Sunday maybe he wouldn't be in the hospital" or "if i didn't let that curse word slip maybe he wouldn't be in the hospital". My temper has gotten worse, depression has set in, questioning is never ending. I hate feeling this way. I try to enjoy every moment I can get with Ty and Larry because I don't know when that may end. I hate that too, having to worry that I may not have forever with my lil guy. I know everyone has to worry about that but We do more so having a special needs baby. This is the hardest thing I have ever had to go through, going from being pregnant and not knowing what the future held. Planning on having a normal baby and when that baby gets here your world crashing into a million pieces. Don't get me wrong Ty is the light of mine and Larry's life and we may not deal with it the way everyone thinks we should but we're dealing with it the best way we can.

Why God? Everyone asks that at some point of their lives. We question and ponder, think about it over and over again. The things is, we may never know WHY?

Larry and I are normal human beings and we are not perfect but we try our hardest to do the right thing and try our hardest to be the best parents we can be. Ty is a gift, a special gift and I would trade him in for a normal baby but I wish his life was easier and I wish I could take all of his pain away from him. I wish I was the one to have to go through all the surgeries and worries for the rest of my life, rather than him.

I am not a English major so this is not perfect grammar or perfect sentences or perfect whatever else. These are my feelings and emotions typed out real quick without even thinking about it. So don't judge, just love. Thank you for reading.

God is Faithful

I went to the Womens Brunch on Saturday. It was like Mrs. Debbie was speaking directly to me and it was something I needed. Needed for my sanity.

As I grew up, I know God has taken care of me. I've always said "God's Grace, Daddy's Prayers". With everything that could have happened to me and with all the situations I grew up in, God took care of me. Now with way different circumstances, my baby, something I never even thought would happen.
You go to the hospital, in labor or being induced, you expect to have your baby and have him beside you with your family around staring at him and adoring him. Things went way different. Christmas day Ty had his first surgery, Egh! Two days later, second surgery. Ahhh! So many nights of crying myself to sleep, wondering why?
What did I do so wrong for my baby to suffer?
Why me God?
Why do you hate me so bad for my baby to suffer?
Let me take his pain.
Something so precious and sinless, how could you?
That and more went through my head, sometimes still do (to be honest). Never thought I could be so mad at God. We couldn't even pray, we didn't know how to pray all we could pray is for what we wanted. We really did want God's will to be but then again I wanted my baby's kidney to start working and him be healthy and to not have 8 stinking surgeries. What God would do that to a baby? But as soon as I said that (in my head) I thought, well God did give his only son to die on the cross for me and my sins and Ty's sins. (i was crying before i even thought of this and crying even more after i thought of it) It was like a smack in the face, WOW! I felt ashamed but still mad at the same time. My emotions everywhere.

God has been so good to us. So many people encouraging us and loving on us. Family being there for us no matter what it took. God leading and guiding every decision and everything happening even if we thought it was bad. God watching one of His miracles.
With Ty having eight surgeries his fourth surgery hit him the hardest. He had four different surgeries combined at one time, which being the nissen, g-tube, colostomy reversal and appendix removed (which we didn't know about). That whole night he would stop breathing, his heart rate would drop and they would have to bag him and help him breath. Of course, we stayed with him that whole night but God was there sitting right there with us and us knowing he would be okay.

Just thinking back to every episode of our hospital life.

First surgery on ChristmasGetting Ty's numbers strait
Getting rid of the peritoneal infection
1, 2, 3, 4, 5, 6, 7 & 8 surgeriesContinuous heel sticks, IV's
Spinal tap
Heart issues, etc.

Ty bounced back from every surgery and infection. There were times we wanted to give up but you look in that small bed at that small body that God gave you to take care of. He gave us Ty for a reason knowing we could stand strong for him and take care of every need, not know how but knowing that God will guide us and never leave us. Through all of this Ty has been a fighter, he fought his way through the hospital, doctors and he didn't give up on us.

I say everything to say this, God puts us through life experiences to get us through the next stage of life experiences. We may never know the reasons but do know that, God has not brought us this far to just drop us off now.

Since we've been home we have tried as much as possible to make as many memories with Ty. Our first big outing being, hiking Mount Pisgah.

He's pooped: )

Being able to be with my husband and my son and not even thinking I would be able to get this moment was awesome. So even though we have had a tough time, God has been faithful, He's been good and right beside us every move we make.

Here's a video not of Ty but another Miracle. Hope this is of some encouragement.

Fundraiser...

This fundraiser wouldn't be happening if it weren't for the Truesdale's. Shirley came to me wanting to help us, knowing what we would be going through by getting a kidney for Ty and all the cost included. Shirley's husband Kirk is needing a liver transplant and has been waiting for some time. They have had a long and hard road and God has provided for them in mysterious ways and they continue to have the faith that God will provide. So please join us in the fight for both of our loved ones.

(Click here for Ty's Story)
Fundraiser Promotion is 2 hours of unlimited play for $15
(cost normally is $24.99)
A portion of the cost will be going toward the fundraiser. All donations are welcome. We will be raffling items on the day of the event.
If you want to help in any way just email me at meganrgrobertson@yahoo.com or message me on Facebook

Kirk, Shirley & Kayla Truesdale

Their Story
Kirk is 49 years old. He is a loving husband and father to a beautiful 12 year old daughter; who loves her daddy deeply, and is very invested in his fight for life! Kirk was diagnosed with hepatitis and advanced liver disease 5 years ago. he has been fighting ever since. His only chance at survival now is a liver transplant. He is awaiting a liver through the UNOS National Transplant Listing service. He has been waiting now for over 2 years.

Kirk is unable to work and relies solely on a small disability check and his wife's income. Because of the enormous expenses associate with this illness, hiss transplant will not be possible without your financial help. The cost of this transplant is very expensive, even with insurance. Just the co-pays on the required immunosuppressant and anti-rejection medications following his transplant will run $1500-$2000 a month for the rest of his new liver's life. This does not include the possible costs of additional medical complications. Each year he has been in the hospital 6-7 times for the related medical issues.

Because Kirk is seeking his transplant from Emory University Hospital in Atlanta, GA and we live in North Carolina; the travel and lodging expenses, lost work time for his wife and care for his daughter become an increasing burden too an already emotional and costly situation. He must travel to GA constantly for treatment and once Kirk receives a liver, his family will need to relocate their entire lives to GA for 6-8 weeks. They have already lost their home and their bills continue to mount. You can help!

Family and friends of Kirk Truesdale are raising money to pay for uninsured medical expenses associated with his liver transplant.

"No matter how big our storms are, we must have Faith in our Life that God never leaves us; without Faith we could not travel this journey. Without His strength we could not continue this fight. May God richly bless you as He has richly blessed us!" - Kirk

Thank you so much for taking the time read!

Thank you so much for taking the time to read. We love to get sweet & encouraging comments too; )

Ty's diagnosis...

When we arrived at Brenner's Children Hospital the charge nurse "Carol" noticed a hole in Ty's ear. She pointed to the hole and said "ah, that's related to the kidneys". Well, with it being 4 a.m. and still in shock. I didn't have anything to say.


When the genetics specialist come by to talk to us he mentioned that Ty might have B.O.R. Syndrome. WHAT? Branchio-oto-renal syndrome is a dominant gene and can occur 1 in 40,000 people. Some of the symptoms have been reported to be hearing loss, ear pits, deformed ear, ear tags, branchial (neck) cyst or fistulas, kidney problems and many other symptoms have been reported but are not common. Individuals with the syndrome do not have every symptom you. It varies with each individual.

In Ty's case, he does have the syndrome. He has 2 out of 3 areas that are affected. He has mild to moderate hearing loss, pits in the ears (as seen above), was born without one kidney and the other a third of the size it should be. As far as anything being wrong with his neck nothing has been detected. Thank you God!

So now the question is how did Ty get this. Well, I (Megan) have symptoms of syndrome. I have the holes in both ears and had a cyst removed from my neck when I was young. As far as any kidney issues, none. My brother has the same symptoms as I and we never knew anything until Ty's issue come out.

So the chance of this happening again is 50:50. How do we prevent it? Either we don't have anymore babies or IVF (In Vitro Fertilization).

Being a new mother and finding out that your son has a syndrome and that he received the syndrome from you, that messes with you mentally. I know I couldn't help it but knowing I could have prevented it, makes me so mad at myself sometimes. There were times I would whisper in Ty's ear "I'm so sorry, Mommy is so sorry" and tears falling on his face. That will probably be one of the hardest things to get over but I'm getting there, slowly but surely.

It's just one of those things that "in time" will heal itself. We know God is in control and He gave Ty to us because He knows we will take care of him no matter what it takes. We wouldn't return him for a healthy baby any day because he wouldn't be the same. God has a plan, we may never know what it is but all we can do is be faithful and try our best.

God is Good!